We went back to the doctor, now for his fifth surgery. Jacob and I were extremely anxious. I had to explain to my son that the purpose of this surgery was to help him not to go blind. Only by the grace of God the tube in the right eye did not have to get removed. The doctor actually took the opportunity to fix both eyes. She kept telling me this is a miracle. Since both eyes were operated at the same time, we had to spend the night at the hospital. Jacob was not happy to wake up with both patches in his eyes. He was so upset. He kept telling me “Mami, why would you let them do this to me?” He was so miserable. He kept crying out to God to help him…that he needed him. We were discharged the next day. These surgeries have been very difficult for Jacob. He is scheduled for one more surgery in March 2018. He hates waking up from surgery with the patch on. He gets very upset with me because to him I allow this to happen. He dislikes it when I give him his eyes drops. (4 different drops, twice a day in both eyes. At one point it was 10 different drops per eye, twice a day.) When they finally took off his patches he was so emotional. He kept telling me “I just missed seeing you, Mami!”
My trials and tribulations did not end. Five surgeries later and going to the doctor almost every week for 6 months, my unemployment was finished and I prayed “Okay God all I have is you. I will trust you.” In June 2017, my previous employer called me back to help them temporarily. Little did I know my child support was stopped due to an error made by the state. God knows all things because if I would not have come back to my previous employer, I would not have had any income. I knew that God was there with my son and me the entire time. I have seen God’s hand move in my life. I have been praying for a career and was recently blessed with a new job opportunity. This is just the beginning of what God has in store for Jacob and me.
The reason why I share my story is because of the great lesson God taught me through it all. God blessed me with the greatest gift anyone could receive and that is being a mother to Jacob. In Hebrew his name means: Holder of the heel; sub planter; may God protect. Jacob has met all odds. He has endured and survived 16 surgeries all by the age of 8. He may have many of the traits and symptoms of a child with SWS, but he is the strongest, most courageous, amazing child I have ever known. He has taught me compassion, patience, sympathy, empathy and appreciation for the smallest things in life.
All my life, I have been very strong and independent, but now I can add to it faith filled and courageous because Jacob is God’s daily miracle for me. He is proof that God exists. I have worked hard for everything in my life from an early age. I believe I have set realistic goals, and have met most of them already. But you are never really prepared for those extras that hit you unexpectedly. You just go with the flow and hope for the best. I know that many women who are raising their children alone never planned it that way. I know I didn’t, but it happened just the same. One major thing I have realized is that, without faith in God, my family, and the support of great friends, I know I could not have made it this far. Everything I do is because God gives me strength and Jacob gives me purpose.